Thursday, August 12, 2010
God is GOOD!
Tuesday, July 6, 2010
Friday, July 2, 2010
"head nodding"
Thursday, July 1, 2010
Good 'ol doctors...
Tuesday, June 29, 2010
Tuesday is therapy!
Sunday, June 27, 2010
He likes to scare his Mama!
On Saturday, June 26th we had Adyn's EEG & nothing abnormal was showing up (the doctor was not there but the lady doing the EEG said nothing was standing out to her). They were able to video Adyn having his "tic"/"twitch" while having the EEG. The doctor should be calling the beginning of the week to go over the results. It's the strangest thing & almost seems as if he's shaking his head no but he's not because there are times it involves his entire body. Today Adyn has had ONE episode of the "tic"/"twitch" so maybe it's something he's going to outgrow. I think he likes to scare me & make me worry! Hopefully he will continue only doing it once a day or even stop. I hope the neurologist has seen a child do this & will be able to diagnose what it is or know why it's happening. I'm just happy that he hasn't been doing it throughout the day & the EEG looked okay. Will update when I hear from the doctor. Until next time...
Friday, June 18, 2010
Just when you think you're catching a break...
Oh, & I would like to mention after checking in a nurse weighed Adyn & got his history. I told her he was dx at 2mos w/torticollis, had the surgery in Feb 19, 2010, continues therapy at CHOA & this "twitching" may be related to his torticollis. She was so rude (I've never had a rude nurse at CHOA...maybe she was having a bad night?) & looked at me & said torticollis goes away it's just stiffness in the neck muscle...I said well, he STILL has torticollis. It was only the way she said it, it was her tone. Really, I think she needs to go back to school or do a little more research on torticollis bc it can cause more then just a little stiffness in the neck.
Thursday, June 17, 2010
Just another answered prayer
Thursday, June 10, 2010
We're getting through the challenge...
Wednesday, June 9, 2010
Things are looking up
- Adyn's continuing physical therapy at CHOA once a week.
- In March had a 6mo recheck with the orthopedic for scoliosis. Still doesn't think he has it but will recheck again in September
- April 14, 2010 Adyn turned ONE! He had a great 1st birthday party on April 10, 2010 & enjoyed eating his smash cake.
- April 15, 2010 Adyn had his 1 year check-up w/Dr. Evans. Everything went great but a heart murmur was heard for the first time.
- April 26, 2010 appointment w/Sibley Heart Center. The doctor was not concerned but wants to recheck him if it's still heard when he's three. Dr. Evans is to keep an eye on it.
- May 6, 2010 eye recheck to check his near & far sight. Recheck in September. The last tear duct surgery was successful :)
- In April we received a letter stating that the neurologist that Adyn has been seeing at CHOA would be closing.
- Helmet scan May 21, 2010. Adyn went from 10.7mm to 6.9mm in 4months! He has made such improvement & is now only wearing it at night. PTL!
- June 2, 2010 Adyn saw his new neurologist & he had no concerns for Adyn except wanting him to have a hearing test. The hearing test is scheduled for June 17, 2010.
- Babies Can't Wait came out on June 3, 2010 to evaluate Adyn for developmental delays. He was only delayed in problem solving but wasn't delayed that much to where he needs their services. He's doing great!
- A 3wk recheck helmet scan June 10, 2010
Adyn is doing great! I am so thankful that he has been showing such great improvement. He's getting so close to walking. Since he got his helmet off he has been saying more things & doing a lot more. He now says mama, dada, nana & attempts to say grandaddy, waves, claps his hands & knows how to get all over the place! Boy is he a handful! He's so sweet & such a joy.
McKenzie has been doing great & being so good to be dragged to all his appointments. She's having her 3rd birthday party soon at Chuck-e-Cheese & very excited about it! She recently had a photo shoot with Helmuth Photography for Classy Sassy Girls (http://www.classysassygirls.com/ website soon & http://www.etsy.com/shop/classysassygirls). This was her first photo shoot & I was amazed at how well she did. She met a new little friend that was her age & enjoyed playing with her in between getting her pictures taken. The photographer took great pictures & her office is filled with amazing photos. I'm going to send updated pictures of her & Adyn to Babes N Beaus & keep my fingers crossed we get a call! Adyn got one call a while ago but that same day found out he had strep so no wonder he wasn't his smiley self.
Sorry I did not go into details about Adyn's appointments. I'm trying to do a quick update while he naps. I think for Adyn's 2nd birthday I'm going to make a book out of what I have blogged so far!
Thanks for all your continued prayers & thoughts. I will post a few pictures above of McKenzie & Adyn. Until next time...
Tuesday, April 20, 2010
Time for an update!
Adyn had his plastic surgeon recheck appointment today and he's doing great. Dr. B doesn't feel he needs the Botox treatments which was what I was wanting to hear. I am so worried about stuff like that since he's so little. He will not need to see him until next April!
He's doing great, talking, pulling up and cruising along the tables! He's definitely more of a handful then McKenzie was. Oh, and I can't forget to tell you I think his 2nd tear duct surgery worked! PTL!
Just a quick update while the babies are napping.
Friday, April 9, 2010
He's a tough little boy
Tuesday, March 23, 2010
Toes in the sand...
Adyn's doing great. He had his orthopedic recheck last week to recheck scoliosis and so far the dr. is thinking he doesn't have it but will recheck in 6 mos. He also had a great physical therapy appt. today. The therapist measured him today and he is progressing very well, yay!
Check back for more updates!
Friday, March 12, 2010
Where have I been?
Friday, February 26, 2010
The collar's off & the helmet's on
Tuesday, February 23, 2010
After almost 4 yrs...
While playing in the bonus room while the guys were painting McKenzie tripped over her baby doll and bumped her little nose on the edge of the toy box. I thought she broke her nose but it's just a little red and bruised. The night before I had bought her new Dora "bamb-aides" (yes, that's what McKenzie calls them) so she put one on her nose. It was so funny but it made her feel so much better!
Adyn's still doing well and the insision site looks good. I took him and McKenzie to the park again today. I'm so ready for Spring to get here. I hate being in the house all day every day.
Monday, February 22, 2010
He's been a trooper
Thursday he has his recheck for his helmet and I'm able to take his collar off 2 hours prior to the appointment to put his helmet on. I hope he will adjust well going back into it.
There's not too much to update on but Adyn's doing well!
Thursday, February 18, 2010
A relief
In less than 5 minutes of being in the post-op room Dr. Salit came in to tell us Adyn did great with the clearing of his blocked tear duct. And in less than a hour Dr. Burstein came in. He showed us pictures of before and after the muscle release. Adyn did have scarred muscle tissue, which therapy probably wouldn't have never corrected his neck with that being there. Dr. Burstein said Adyn barley had any bleeding which was great. He was able to save some of his nerves. When we got home I looked at the incision and it is a little bigger than I thought but that's okay. He wants us to start therapy in a week, which we are scheduled to start back on March 2nd. Adyn will see Dr. Burstein for a recheck in 2-3 weeks.
I was so happy to see them bring Adyn back to me. He was snoozing good and looked comfortable so we kept him in the bed wrapped up until he woke up on his own. He didn't wake up as quick as I thought he would have. Once he woke up I picked him up and tried giving him Gerber Apple Juice. He kept crying off and on which worried me that something was hurting him. We had a little boy in the room next to us that was crying continuously and it seemed Adyn started when he stopped. I guess the nurses are use to that happening. His cry was a little raspy and had some congestion from the tube in his throat. The nurse picked him up and held him over her shoulder to clear some of it out. Since he drank a little apple juice I was able to give him formula. He loved the bottle! I'm sure he was starving since he had not ate since Wednesday at 8 P.M. and it was around 12 P.M. After his bottle he fell asleep for a little bit then woke up and we were ready to be discharged. He did very well on the ride to GG's to get Big Sissy. She was happy to see her brother and held his hand all the way home! Since we've been home he's been a little sleepy but doing very well. 2 prescriptions were given, Tylenol with codeine and an antibiotic. I will keep updates on how Adyn's doing.
Oh, and while waiting in the waiting room there was a little boy probably 5/6 yrs old with a tilt and holding his shoulder up. I told Zach I bet he has torticollis (he thought I was crazy but I can point it out now) and sure enough he was having surgery with Dr. B. I'm so thankful we caught Adyn's so young. The little boy looked so uncomfortable but he may not know any different. Just thought I would share that!
Thank you for all the calls, e-mails, prayers and thoughts. Here's the link to pictures from today http://www.facebook.com/album.php?aid=29808&id=1242003758&l=f84cc79edd
(update: Adyn was given his Tylenol around 4:15 P.M. and I had to wake him up around 7:30 P.M. to eat. He probably would have slept until tomorrow morning but he didn't eat much today. He's still seems to be doing good. He keeps trying to crawl but it seems to be a little difficult with the neck collar on. Adyn is also a little "tt" thing today because of all the fluids to keep him well hydrated! Keep him in your prayers for a speedy recovery! :)