Friday, July 2, 2010

"head nodding"

Are you ever left undiagnosed? Well, Adyn is with his "head nodding", as the doctor called it. Spoke to the doctor & he said the EEG was normal, he doesn't think it's any thing related to epilepsy & the only other thing to do would be to admit Adyn to CHOA in their EEG monitoring room for 24hrs. I do not find that necessary nor do I want to do that since all that would be done is another EEG & video. The doctor asked me to send in a video & I told him 3 have already been sent. I guess we will just wait & see if it goes away. Adyn's scheduled in August for his regular check-up with Dr. S so I'll just see if he's still doing it at that time. There is nothing worse than a doctor having no clue what it is & being left undiagnosed. I pulled up a video on You Tube (this is where the doctor wanted the videos uploaded & sent from) of a little girl doing the same thing. The mom never posted if she was ever diagnosed & the video was from 2006. I've said it once & I'll say it again I do not think it's anything serious but I want to know what's causing it. Like a friend said the other day "no news is good news" sometimes. I guess I'll just live by this for now. Until next time...

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