Just when you think you're catching a break...

Just a really quick update about today. I called Adyn's ped 1st thing this morn. advice nurse recomm. calling his neuro. who is out of town & I would not hear back until later today (they closed at 2) or until Mon. Unfortunately waiting until Mon. was not going to work since this "twitch" has gotten more frequent. So, I called the ped back she sent the dr. a msg. & he said to go to Scottish Rite ER. Went tonight & he was having his episode a lot while the dr. & 2 nurses were in the room. I hate to say this but I'm so glad that it was happening that way they could see what we were talking about. Our main question for the dr. was he has already had a normal mri is there any chance something could appear between then & now. She said no! She didn't think it was seizers bc he's conscious & his eyes are not glazed over. We talked about his surgery he had in Feb. for his torticollis & about his plagiocephaly. She then decided to call his plastic surgeon Dr. Burstein to see if he's heard of a child doing this after surgery. He was not the dr. on call but the dr. that was on call said it could be the scar tissue forming & causing a "cramp" which is why he's jerking his head to the left (it could be hurting when it happens). There is probably nerve irritation also. We were told to put warm compresses on it then motrin. More stretching & massaging which I've been doing but it seems to be bothering him. If it still persists in 2-3 day we are to call Dr. B back & he will prescribe a nerve medication (oh, I HATE giving my children medicine...just scares me so much). I'm just glad they are thinking it's related to his surgery & not seizers.
Oh, & I would like to mention after checking in a nurse weighed Adyn & got his history. I told her he was dx at 2mos w/torticollis, had the surgery in Feb 19, 2010, continues therapy at CHOA & this "twitching" may be related to his torticollis. She was so rude (I've never had a rude nurse at CHOA...maybe she was having a bad night?) & looked at me & said torticollis goes away it's just stiffness in the neck muscle...I said well, he STILL has torticollis. It was only the way she said it, it was her tone. Really, I think she needs to go back to school or do a little more research on torticollis bc it can cause more then just a little stiffness in the neck.