Just when you think you're catching a break...

Just a really quick update about today. I called Adyn's ped 1st thing this morn. advice nurse recomm. calling his neuro. who is out of town & I would not hear back until later today (they closed at 2) or until Mon. Unfortunately waiting until Mon. was not going to work since this "twitch" has gotten more frequent. So, I called the ped back she sent the dr. a msg. & he said to go to Scottish Rite ER. Went tonight & he was having his episode a lot while the dr. & 2 nurses were in the room. I hate to say this but I'm so glad that it was happening that way they could see what we were talking about. Our main question for the dr. was he has already had a normal mri is there any chance something could appear between then & now. She said no! She didn't think it was seizers bc he's conscious & his eyes are not glazed over. We talked about his surgery he had in Feb. for his torticollis & about his plagiocephaly. She then decided to call his plastic surgeon Dr. Burstein to see if he's heard of a child doing this after surgery. He was not the dr. on call but the dr. that was on call said it could be the scar tissue forming & causing a "cramp" which is why he's jerking his head to the left (it could be hurting when it happens). There is probably nerve irritation also. We were told to put warm compresses on it then motrin. More stretching & massaging which I've been doing but it seems to be bothering him. If it still persists in 2-3 day we are to call Dr. B back & he will prescribe a nerve medication (oh, I HATE giving my children medicine...just scares me so much). I'm just glad they are thinking it's related to his surgery & not seizers.
Oh, & I would like to mention after checking in a nurse weighed Adyn & got his history. I told her he was dx at 2mos w/torticollis, had the surgery in Feb 19, 2010, continues therapy at CHOA & this "twitching" may be related to his torticollis. She was so rude (I've never had a rude nurse at CHOA...maybe she was having a bad night?) & looked at me & said torticollis goes away it's just stiffness in the neck muscle...I said well, he STILL has torticollis. It was only the way she said it, it was her tone. Really, I think she needs to go back to school or do a little more research on torticollis bc it can cause more then just a little stiffness in the neck.

Just another answered prayer

Today Adyn had his hearing test at ENT of Georgia with Dr. Browning at 1:30 p.m. First we saw an audiologist who was wonderful. She took us to the room & told me to sit in a chair that was in a box looking thing. Okay, if you are claustrophobic I would not recommend getting this hearing test which I think is called the behavioral audiometry. Luckily it did not bother me too much because both of my babies were with me & I could see the audiologist. She played a few sounds & Adyn was to turn his head towards each sound. He did great & turned towards every sound. She then placed little things into his ears to take pictures to make sure his ear drums were okay. Everything turned out great.

We saw Dr. Browning after the test & he was wonderful as well. He was recommended by my friend Jessica whose 2 kids had tubes done by him. He checked Adyn's ears & said he has little ear canals but everything look good & no fluid in the ears. After examining Adyn's ears he didn't seem concerned. He mentioned he doesn't know much about pediatric speech but from experience with family kids & his own they all do things at their own pace. I totally agreed with him! McKenzie did EVERYTHING so early where as Adyn hasn't. Adyn does say mama, dada, nana & babbles a lot (sometimes he gets so into it & I just wish I knew what all the babbling meant). The Babies Can't Wait therapist said once he gets his walking down his speech will come soon after that. I think she's right! Dr. B is sending a letter to Adyn's neurologist who referred Adyn to him. He said if he's still concerned the next step is an auditory brain stem response test. This test would require Adyn to be sedated. They place wires to the scalp & sounds are made into the ears. The test doesn't take that long but Dr. B said he highly doubt he would want that done. I hope he's right because I don't want Adyn to be sedated anymore plus all the other testing was normal. His speech will come soon enough & if not we will see a speech therapist I'm sure (I mean we have already seen every other specialist known).

I want to thank all of you who have been praying for Adyn & the family through this challenge. All prayers are being answered (Jeremiah 33:3)! I really appreciate all the thoughts & messages I get asking how Adyn's doing. PRAISE GOD! Until next time...

We're getting through the challenge...

This morning Adyn had his 3 week helmet scan at Meridian Mark. 3 weeks ago he was at 6.9mm (which means the difference between the front right to back left & front left to back right of his head) and the scan today he was at 6.2mm! He had great improvement for 3 weeks. I am proud to tell you with tears he's now DISCHARGED from the helmet! After his appointment I called my mother-in-law and could barely tell her the great news because I was crying. It has been such an emotional 1st year. When Adyn first got the helmet I thought he was going to be in it for a year or longer. They could not tell me how long he would be in it because they didn't know how much growth he was going to have. He only wore the helmet for FOUR MONTHS! All my prayers have been answered. I was dreading it for him having to wear it all Summer but thankfully no more helmet. I really think things are starting to look up! Until next time...

My beautiful children

Things are looking up

Once again I have not had the time to update the blog. It has been a little over a month since I have been on here and wow have things changed. Adyn's doing great & McKenzie is getting to be such a big girl. I cannot believe that McKenzie is almost THREE & Adyn turned ONE in April. Where is the time going? Well, I'll update you on what has been going on...

• Adyn's continuing physical therapy at CHOA once a week.
• In March had a 6mo recheck with the orthopedic for scoliosis. Still doesn't think he has it but will recheck again in September
• April 14, 2010 Adyn turned ONE! He had a great 1st birthday party on April 10, 2010 & enjoyed eating his smash cake.
• April 15, 2010 Adyn had his 1 year check-up w/Dr. Evans. Everything went great but a heart murmur was heard for the first time.
• April 26, 2010 appointment w/Sibley Heart Center. The doctor was not concerned but wants to recheck him if it's still heard when he's three. Dr. Evans is to keep an eye on it.
• May 6, 2010 eye recheck to check his near & far sight. Recheck in September. The last tear duct surgery was successful :)
• In April we received a letter stating that the neurologist that Adyn has been seeing at CHOA would be closing.
• Helmet scan May 21, 2010. Adyn went from 10.7mm to 6.9mm in 4months! He has made such improvement & is now only wearing it at night. PTL!
• June 2, 2010 Adyn saw his new neurologist & he had no concerns for Adyn except wanting him to have a hearing test. The hearing test is scheduled for June 17, 2010.
• Babies Can't Wait came out on June 3, 2010 to evaluate Adyn for developmental delays. He was only delayed in problem solving but wasn't delayed that much to where he needs their services. He's doing great!
• A 3wk recheck helmet scan June 10, 2010

Adyn is doing great! I am so thankful that he has been showing such great improvement. He's getting so close to walking. Since he got his helmet off he has been saying more things & doing a lot more. He now says mama, dada, nana & attempts to say grandaddy, waves, claps his hands & knows how to get all over the place! Boy is he a handful! He's so sweet & such a joy.

McKenzie has been doing great & being so good to be dragged to all his appointments. She's having her 3rd birthday party soon at Chuck-e-Cheese & very excited about it! She recently had a photo shoot with Helmuth Photography for Classy Sassy Girls (http://www.classysassygirls.com/ website soon & http://www.etsy.com/shop/classysassygirls). This was her first photo shoot & I was amazed at how well she did. She met a new little friend that was her age & enjoyed playing with her in between getting her pictures taken. The photographer took great pictures & her office is filled with amazing photos. I'm going to send updated pictures of her & Adyn to Babes N Beaus & keep my fingers crossed we get a call! Adyn got one call a while ago but that same day found out he had strep so no wonder he wasn't his smiley self.

Sorry I did not go into details about Adyn's appointments. I'm trying to do a quick update while he naps. I think for Adyn's 2nd birthday I'm going to make a book out of what I have blogged so far!

Thanks for all your continued prayers & thoughts. I will post a few pictures above of McKenzie & Adyn. Until next time...

Time for an update!

Once again I have not had time to update my blog. About 2 weeks ago Adyn had his scan recheck at Meridian Mark for his helmet. Before going into the room I was asked if I would mind if they took pictures since he's so cute & they love that I have wrote "It's OK To Ask" on his helmet. Of course I did not mind! The pictures they took will be used for brochures, advertisements, etc. McKenzie, Adyn and I were in the pictures. I felt so honored that they chose Adyn out of all their "helmet" patients. His scan did go well and he has shown improvement but will be in the helmet a little longer due to the torticollis. She did say there will be a time where he will only wear it at night which was a relief since he gets so hot in it and Summer is around the corner.

Adyn had his plastic surgeon recheck appointment today and he's doing great. Dr. B doesn't feel he needs the Botox treatments which was what I was wanting to hear. I am so worried about stuff like that since he's so little. He will not need to see him until next April!

He's doing great, talking, pulling up and cruising along the tables! He's definitely more of a handful then McKenzie was. Oh, and I can't forget to tell you I think his 2nd tear duct surgery worked! PTL!

Just a quick update while the babies are napping.

He's a tough little boy

Adyn had surgery on February 18th for his blocked tear duct in the right eye. Within 7 days it should've look like his left eye. Well, of course it didn't. He had his 2nd surgery for the blocked tear duct today. Today's pocedure was called a Lacricath and they put a balloon and catheter in. If this does not work he will have a stint put in. Lots of prayers being said because I do not want to have to put him under again. Adyn did good with the surgery but had a few problems after surgery. When they brough him back to the room within 5-10 minutes his oxygen level started dropping. His level went from around 98 to 70. 3 nurses rushed in and he started to turn blue. I was scared to death. One of the nurses put the oxygen on him for a while and he was back up to 98-100. After getting his oxygen level under control he slept for about 45 minutes. Other than that Adyn did great with the surgery and his eye looks a lot better. I just have time for a quick update on him!