Tuesday, July 6, 2010
Friday, July 2, 2010
"head nodding"
Are you ever left undiagnosed? Well, Adyn is with his "head nodding", as the doctor called it. Spoke to the doctor & he said the EEG was normal, he doesn't think it's any thing related to epilepsy & the only other thing to do would be to admit Adyn to CHOA in their EEG monitoring room for 24hrs. I do not find that necessary nor do I want to do that since all that would be done is another EEG & video. The doctor asked me to send in a video & I told him 3 have already been sent. I guess we will just wait & see if it goes away. Adyn's scheduled in August for his regular check-up with Dr. S so I'll just see if he's still doing it at that time. There is nothing worse than a doctor having no clue what it is & being left undiagnosed. I pulled up a video on You Tube (this is where the doctor wanted the videos uploaded & sent from) of a little girl doing the same thing. The mom never posted if she was ever diagnosed & the video was from 2006. I've said it once & I'll say it again I do not think it's anything serious but I want to know what's causing it. Like a friend said the other day "no news is good news" sometimes. I guess I'll just live by this for now. Until next time...
Thursday, July 1, 2010
Good 'ol doctors...
Do you ever get frustrated with a doctor's office? Adyn's EEG was done on Saturday. We were told we would hear from Dr. Silverboard Tuesday or Wednesday since he was not there at the time of the EEG. Well, it's now Thursday & I have yet to hear from him or his office. I called to ask about the EEG & see if Dr. S had a chance to review the video. The receptionist said the EEG was NORMAL! I figured it would be considering he had a normal MRI December 16, 2009. I asked what he thought about Adyn's head shaking, what may be causing it & why is it happening. Well, the only answer I got was the receptionist reading Adyn's chart from his appointment June 2nd. The head shaking started after that appointment & I'm assuming the doctor saw Adyn's EEG normal & left it at that. I know he has more severe patients to deal with but he ordered the EEG & I should receive an answer. I'm so frustrated paying these doctors & no answer. I know it's nothing serious but I want to know what it is. Hope to get a call back today or tomorrow morning. I've done all that I can & was asked to do, videos, EEG, appointment with the plastic surgeon, massaging his neck and an ER visit.
Ever feel like you have to vent a little?! Well, that's what the blog post was all about :)
Until next time...
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