Tuesday, March 23, 2010

Toes in the sand...

We cannot wait for our family beach vacation in June. I am ready to have a week of no appointments and relaxation. McKenzie is going to have a blast and I'm sure Adyn will too. McKenzie was 13 mos at her 1st visit to the beach (I was 6 wks prego w/Adyn) and Adyn will be 14 mos. We booked our condo yesterday. We decided to get a ground floor so McKenzie will be able to run around while we are at the condo. Hopefully Adyn will be trying to walk by then but I'm not pushing it. He gets into so much more then McKenzie ever did!

Adyn's doing great. He had his orthopedic recheck last week to recheck scoliosis and so far the dr. is thinking he doesn't have it but will recheck in 6 mos. He also had a great physical therapy appt. today. The therapist measured him today and he is progressing very well, yay!


Check back for more updates!

Friday, March 12, 2010

Where have I been?

Well, I have not had any time lately to update the blog. I thought March was going to be a little less overwhelming but I thought wrong. This week Adyn had 4 appointment and next week is the same (well, 1 of the 4 is for me). The following week is just therapy so hopefully I will be able to relax.

I know you are probably wondering how Adyn has been doing. He's doing great! He pulls up on everything and crawls so fast. I am surprised I'm not skinny having to chase after him all the time. He definitely gets into more things then we remember McKenzie getting into. Zach seems to think it's because we only had her to watch and it was easier. Maybe he's right?

Adyn started physical therapy back last week. His therapist could definitely tell his facial structure looked a lot better but couldn't really tell in his neck (I thought that was a little crazy because I could definitely tell he wasn't as tight). She also wanted Adyn to crawl on all 4's but he knows how to get around army crawling and he isn't going to change because she wants him to. Our pediatrician told me not to worry about that because some babies never crawl. Adyn's physical therapy appointment this week went a lot better then last week. She could tell an improvement in him. Adyn had his 2 week recheck for his helmet yesterday and he's doing great with that. He will go back in 2 weeks for a recheck and on April 7th have the scan done again. Hopefully after the scan they will be able to give us an answer on how much longer he will be wearing it. After his scar heals his therapist is going to try the tot collar (which forces his neck to stay straight) and he will be out of the helmet 3 hours a day instead of 1. I'm not too sure how Adyn will like that because he misses his helmet when I take it off. He's such a good boy!

You're probably wondering how Adyn's eye doing since surgery. Well, surgery did help his blocked tear duct a lot but not 100%. There's a 95% success rate for the surgery and I guess Adyn is that 5% (he likes to be difficult, ha ha) where it doesn't clear it like it should. I had to take him back for a recheck yesterday because after being on an antibiotic and a steroid it didn't help. Dr. S put some kind of drops in each eye that are yellow and waited 5 minutes and checked his eyes and nose. The left eye cleared and showed no yellow but the right still had some which let her know he still has blockage in that eye. He will have yet another surgery but this surgery will take a little longer. It's called a Lacricath procedure (lacricath balloon dilation). She will pass the probe like she did for the 1st surgery then the lacricath balloon catheter is passed into the tear duct and inflated. The balloon allows the blocked tear duct be opened. After it's opened she will removed the balloon and catheter. Hopefully this will work because if it doesn't he will have to have a stint placed for 6 months then removed. Please continue the prayers for little man! When Dr. S told me he was going to have another surgery I just wasn't shocked. It just seems once I think things are settling down something else is put on me. He's so worth every bit we've been through but I am ready for a break. Some days I just wonder will I ever catch a break from appointment and procedures. I keep telling myself all I can do is put it in God's hands and continue my praying.

On Wednesday Adyn had his 1 month weight recheck and he gained 1lbs 5oz. He now weighs 19lbs 3oz (McKenzie was 19lbs 5oz at her 9 month). He has gone from 9% to 12%. Hopefully he will be where she wants him for his 12 month check up because if not he will be put on Pedisure (I think that's what it's called) and may have to see a nutritionist (I don't want another appointment added to my schedule).

Other than appointments and surgery being scheduled we are all doing well. McKenzie has a "big girl" bike and is doing great. She is also being potty trained! Whew, I never though this day would come. She's been such a big sissy and loves Adyn so much. Some times she thinks he's bigger than he is and tries to ride him like a horse. It's so funny but that's all I need is for her to break his back, ha ha ha! One day I bet he's going to out grow her and she will be able to do that but he's too little right now.
Some updated pictures: